I know before getting up I have to put my AFO on first or I'll fall with the first step I take with my affected leg. The spasticity has gotten really bad since I was unable to get my scheduled round of Botox injections in June. My foot arches downward and inward. You'd think I'd be able to walk on my tip toes, wouldn't you? But no, the inward rotation increases with weight bearing so it would be foolhardy to do so because the foot would roll farther inward. Not to mention when it does a hard spasm on top of the spasticity the shoe and brace have to come off or more bones will break. There's no denying the spasms nor controlling them. Unfortunately, it will get worse before I can get into the neurologist for my injections.
After I prepare dinner each night, I usually get a hard spasm in my foot and ankle. Most of the times, my daughter (unless she's working late) will come in and put the finishing touches and serve the plate while I'll painfully hobble to my chair, take off my shoe, and AFO, massage and prop my foot up. It's that last half an hour of standing and moving that gets me. It's now to the point of almost an hour before I can don my brace and walk again albeit with a manageable amount of pain, instead of two hours of spasms like it will be. I can at least get to the bathroom and back again. This is how I'm managing my day now. Fifteen to twenty-five minutes of activity to an hour rest, but I am doing. I can no longer wear my new AFO with the spasticity so high. I'm stuck in my old AFO that allows for the swelling and the spasticity, and the straps need to be replaced. Come on PCP so I can get an appointment with a brace maker!
About an hour later, the rain started. The skylight in the kitchen started dripping. I hadn't put the pitcher down before because it wasn't raining. I shrugged off the sweater I'd donned. I'm just not used to air conditioning anymore. My daughter keeps the thermostat at 68℉ which is a little chilly to me since my blood pressure and pulse rate took a nose dive after my Baclofen removal surgery in 2019. That's even with the meds to raise both. *I digressed, sorry* I donned my AFO and headed to the kitchen. The pain was manageable as I hobbled across the distance. I grabbed a couple of paper towels to wipe up the water and placed the pitcher on the floor to catch additional drips. Come on two days in a row without rain so my son-in-law can recaulk the skylight and have it cure!
Relieved, I hobbled back into the kitchen to run a sink of washing water in the sink. I was putting the last dirty pot in the sink when a twinge just above the ankle told me it was time to take a load off so I grabbed what little bit of trash there was to throw it in the trash can as I went. I hobbled back to my chair. The dishes would wait until the morning. I'd noticed that my bathroom trashcan was full but I'd save that chore the next time I'm up and so it goes. It's a good thing I can see a sequence of events when needed/
Prioritizing tasks has been my blessing living post stroke. It doesn't always go as smoothly as this, I wish it did. There are still times, after nine years of living post stroke, I forget to don my AFO first before getting up. All it takes is standing up to realize my mistake. Luckily, I haven't fallen in my hast of having to pee. Or, have to back track to get things done. It is what it is.here.
Nothing is impossible.