Showing posts with label battle to achieve. Show all posts
Showing posts with label battle to achieve. Show all posts

Sunday, April 5, 2020

Sunday Stroke Survival: Keep on Truckin'

This week begins the hurry up and wait portion of gardening. Seeds, and transplants are planted. Now, we just have to watch them grow.

This leads me to the topic of today's post. Keep on Truckin'. Yes, I'm dating myself. It was the time of convoys and everyone had a CB radio in their vehicle. Although this decal is still around today. But, it's more than that to me. To me it means no matter what just keep going.

Yes, we've had a stroke, or related to someone whose had a stroke. But right now I'm talking to the survivor. Yes, you may be disabled permanently. Yes, you can't do all you used to do. Now, wait a minute is that entirely true?

Many people bemoan the fact of what they can't do. I say you aren't trying hard enough. I'm not wheelchair bound because I fought my way out of it. Even if I were, it wouldn't entirely stop me from doing what I have and want to do. Can you guess I'm stubborn? Yes, that's true enough. I don't lay down and just take anything.

Many readers read my blog and say I'm inspiring. My progress, what I can do, and achievements are awesome. But the fact is, I'm handicapped by a half not working body too.I struggle against clonus tremors which may cause my leg to buckle. I have PBA, and cry when I should be laughing, burst out in anger for no reason, and laugh instead of cry (inappropriate emotions). I have constant spasticity to the point where it stops me from walking or have the ability to straighten my arm. I  have aphasia and have difficulty finding the correct words. At times, I still have difficulty uttering a single word. None of that has changed in the past seven years. I also get set back to square one with repeated strokes and have to fight my way back again. Each time, I regain a little less. All my strokes have been basal ganglian ischemic and self rectifying, small hemorrhagic in nature.

I don't say this for self pity. I'm just stating facts. It's what I face each and every day of living post stroke. Sure, I tell you the "rosy" side and what I've conquered this week. How I achieve certain things to do. Several other stroke survivor blogs that I read do the same thing. Why? Because we feel it might help someone else who may be facing the same thing.  We choose to inspire "CAN DO" attitudes.  All other stroke survivors have to do is try. Will you succeed the first time? Probably not. But keep on truckin' and keep trying. As a child, how many times did you try to tie your own shoes? How did it make you feel? The word is self empowered. It was something you could do for yourself and nobody had to do for you ever again. Well, not never again. A stroke has set you back some.

My shorts that I wore after my first stroke had a tie in the front of them. This was after I progressed back to them from men's boxers. I sat on the toilet trying to tie the ties. Finally, I figured it out. I proudly went out to show my husband. After his beaming praises and his generally cheerleading, he untied my shorts. "Now, do it again."

After I did it, I looked at him for praises. He did and untied it again. "Do again." After I retied the shorts a third time he asked, "You got it?" I nodded. He didn't do this to be mean. He knew that repetition was the key to learning and having it stick. Now, I can't tell you how many times I tried to tie my shorts and didn't have positive results, but I did figure out a way for me to tie my shorts with them on my body with one functioning hand. I still haven't forgotten. My point is this, I knew what I wanted to do and I didn't give up trying.

Some things I try and after I achieve the ability or relearn, I'll allow others to do it. When I first started writing this stroke blog, I mentioned that using hedge trimmers was impossible one handed. But, I hadn't tried to figure it out. Not to let anything daunt me, I figured it out. I can use hedge shears. It's clumsy and looks really weird watching me do it, but the point is I figured it out. But, I'll allow someone else do it for me. I can lift a 50# bale of hay or feed, but only if I have to. Mel and I moved two rounds of straw off her truck bed when we started the orchard because we had to and there was no one around to help. Each of these bales weighed 700#! Both of us were exhausted when we finished putting them where they needed to be. But we did it. After that fiasco, we settled for the more expensive 50# bales the next two years. They are more both of our speed. Lesson learned.  Some things are just fool hardy. This was an example of one. I'll do something once, if it's not necessary, just to prove I can or in this case, we can.

Now, I'll take some chances like operating power tools for the first time. For example, the chop saw. The thought of a one handed person operating one of these makes many persons' blood run cold. Unlike Dean, who does this fairly frequently (grin). I blame Dean and the picture of him in his workshop that he used to have on his blog for even giving me the idea. I use clamps for the hand I'm lacking. I've gone on to use my battery operated tool Ryobi set to build and repair things around the homestead to take the place of my nonfunctioning hand. Things like chain saws and weed whackers require a harness attachment. But, my point again is I can. It just takes some finagling to figure out how to do it. I can't let Mel have all the building fun and doing it safely.

If I didn't try, I never would do most of the things I used to do. Or, even want to do. Just because I'm disabled doesn't mean I'm worthless. I just figure out a way around obstacles and do it. Now there's some things I can't do with my left hand that I can do with my right. I'm definitely a right hand dominant individual with my creativity. I lack a lot of dexterity in my left hand for fine detail like drawing. I can barely write legibly with my left hand. It has to do with damage I've done to the hand over the decades. For example, my left thumb and wrist. It has been crushed, repeatedly fractured, cut to almost being severed so the resulting permanent damage and from the repairs has left it with only limited function. The rest of the hand has suffered similar abuse to where it is only half functioning. Does that stop me. No, it's a hindrance and inconvenience. It's my one functioning hand so I work around the problems to keep on truckin'.

Well, I've put off folding my laundry long enough. I really dislike folding laundry. I disliked it long before I had my strokes. UGH! It's sitting in the basket waiting on me. I better get to it and keep on truckin'.

Nothing is impossible.
     

Sunday, January 27, 2013

Sunday Stroke Survival~ Pushing the Envelope

Today, I'm talking about pushing the envelope. It's been one of those kind of weeks.

I remember the opening lines of the original lines of Star Trek..."Where no man has gone before" Dum, Dum, Dum.  For the stroke survivor it's, "Where I have gone before and trying to get back to."

As I said it's been one of those kinds of weeks where I wanted to fight against the confines of what is normal. At least, what is normal for me right now. To stretch my boundaries and fly a bit into the previously known. It has been the battle of the caregivers in my house. I'm my husband's caregiver and he's mine.

Courtesy Andrew MA
In thi-s-s corner, is hubby dearest. Guaranteed to go at least two rounds, but as many as four. His record 64 wins out of 200 matches in 20 years of marriage, 60 by TKO and 4 by KO.He is a featherweight division contender at 134 lbs to my welterweight at 150.

Contestant #2, my eldest daughter. She's on a rematch from two weeks before where she fell under the champion's hefty, left undercut to the chin in the first round. She's a featherweight contender at 120 lbs soaking wet in heavy winter clothing.

Contestant #3, my youngest daughter. She's on a rematch from a month ago. Her hilarious Jerry Lewis style footwork had the crowd in tears of laughter, but she punched like a girl without her handy shovel back up. A welterweight contender at 140 lbs with her toddler in tow 160 lbs. A force to be reckoned with.

The champion, me, takes on all comers. She's fearless in her disability. What she has lost in mobility, she makes up with her cunning, practice, and advanced strategy of studying her opponents for decades.

What's at stake besides the championship belt...driving more, chauffeuring, and mobility.

DING, DING, DING
Match #1 Begins
Jaunting Jo opens with the first blow. "Why won't you let me drive on the highway?"
Terrifying Ter counters with, "Because there's too much traffic."
"But I've driven all around this subdivision, one mile one way jaunts up the road and crossed several busy roads including the highway."
Terrifying Ter counters with a blow to the midsection, "In twenty years I haven't had an accident."
Jaunting Jo backs away breathless. "Neither one was my fault and you're forgetting the concrete post you hit."
"Oh yeah," Terrifying Ter whimpers and goes down for the count. "I guess you aren't going to get practice on the highways unless you drive them.
TKO Jaunting Jo.

DING, DING, DING
Match #2
Jaunting Jo opens with a glancing blow. "I haven't heard from you in two weeks."
Combat Cat bobs and weaves. "You know I started my new job. If you needed something you could always call or text."
Jaunting Jo feigns a blow to the head, but punches her in the gut. "You live two blocks away. What happened to Saturday shopping?"
Combat Cat replies, "I guess you can't go by yourself, huh?"
TKO Jaunting Jo.

DING, DING, DING
Match #3
Daughter #4 arrives with toddler in tow. Referee calls unfair advantage because a grandma can't fight with a cute, youngest grandchild smiling at her. She gives the baby to grandpa.
Jackhammer Jen opens with, "What are you doing without your cane?"
Jaunting Jo counters with, "I can walk perfectly fine without it in the house."
Jackhammer Jen hits below the belt with, "You're still healing from the last fall you had."
Jaunting Jo sidesteps the blow with some fancy footwork. "That fall was almost six months ago. My balance is much better now. See?"
Jaunting Jo bends over and scoops up her grandson with one hand from grandpa's lap and walks away.
KO Jaunting Jo.

A lot has been said about the difficult road caregivers walk. I know, I am one too. Sometimes they will try to clip your wings to prevent you from flying. Granted they do it because they love you. And as a stroke survivor, I understand the thoughts behind the actions...to recover takes educated chances to try and get better.
  • To push the envelope everyday. 
  • To try new things everyday.
  • To be allowed to try everyday.
  • To be allowed to fail this time and try again.
For caregivers to be effective they must have...
  • Compassion
  • Step in when asked
  •  Don't assume we need your help
  • Encourage recovery don't hamper it
I went to my first local support group meeting also this week. The stroke survivors and their caregivers seem to have it all worked out although they readily admit to battle of the caregivers, so I'm not alone in wanting to push the envelope. While each survivor had things they just took control over, and their caregiver mostly just stood back and let them. I will admit to being the youngest, as in newest, stroke survivor in the group, my DH, Terrifying Ter and I will work through it too. It will just take time.

I'm going to end this now before I breakout with a off-key, monotone version of "I Am Woman." But, nobody does it better than Helen...