Sunday, November 15, 2015

Sunday Stroke Survival: The Squirrel Ran Around the Tree...

Know most of us how to tie our shoes. We learned as children. With my own children, I either used the bunny ears or the squirrel-ran-around-the-tree learning poem seen in this video...

Look familiar? These methods haven't changed much in decades.

But all that changed for me after my stroke. I struggled with one handed shoe tying to the point where I just bought elastic laces. It was a cop out and a way to get my shoes on without breaking out in frustrated tears.  Just after your stroke, the least frustrating method is best because you are having to reteach your body how to do EVERYTHING! I know I'm not the only one who felt like they were in somebody else's body and trying to get it to move normally like a puppet master with disconnected strings. In the beginning, I chose what I could successfully achieve. The fogginess in my brain didn't really start to clear for several months and honestly after three years, there are still some issues that don't make sense when attempted.

Confused and Awkward
For me, it was the double whammy of having a stroke and losing the use of my dominant side also.Nothing is ever easy when you are trying to do something with your nondominant side. After all, for me, my dominant side has been in control for over fifty years. If it takes that long to make my nondominant side to become dominant, I'm just out of luck. It still feels awkward. I still mentally picture my right, affected side as dominant even though it's ate up with spasticity and partial paralysis.

Back to shoe tying or bow tying. I have mentioned before that now my stronger learning capabilities is visual. I spend a lot of time on YouTube and Vimeo just seeing if there is an easier way to do things, or how others missing the use of a limb accomplish tasks. Yes, there is also that "not alone" sense of gratification too.  All written instructions read like stereo instructions in a foreign language to me now. Watching a five to ten minute video cuts around dead brain cells fairly easily for me. I may have to watch it four or five times to get it locked into my brain. But that's the beauty of videos,  you can pause it, rewind it, and watch it again.

I guess it took me about a full year to even attempt tying a bow single handed. It probably would have been easier with shoe laces, but that wasn't the issue I was having. It was the bow on the front of my shorts. It wasn't because they wouldn't stay up because the waistband was elastic. When the ties came undone, they would hang below the length of the hem. This was especially/possibly a messy situation when going to the bathroom. Plus, it looked sloppy untied. I have enough not going for my looks without looking unkempt too. 

So I was sitting on the commode fiddling with it. I had watched several videos on how to tie shoes with one hand. Eventually, I settled on the one shown in this video. It just sort of clicked. There are many such methods so use the one that works for you.

I Love Success!

I hobbled out of the bathroom to my husband's hospital bed. I told him to watch. I undid the bow and retied it again. I was like a kid with a new toy!  I was so proud of myself. My hubby went into the cheering mode like he did with our youngest who'd had a TBI (Traumatic Brain Injury). You'd have to see this corny, backward hands clapping motion and him barking like a seal. I'll have to get my oldest to do it on a video to share with you. She does it best except she doesn't have his deep baritone voice. It's something that was uniquely his. A sign of approval and pride.

It was so unusual that the girls had mentioned it at the Pastor's visit before my hubby's funeral. It kicked in my PBA (PseudoBulbar Affect) at the funeral when the pastor recreated it for the mourners present. I went from crying tears of sadness to uncontrolled laughter. I had to stand and touch his casket to regain control. 

Anyhow, I can tie my shoes if I ever get shoes with laces on them again.  Right now, Velcro closure orthotics shoes are all I can wear with the special build ups because of my AFO, contractures in my Achilles tendon, and the spasticity in my leg. But in the meantime, I'll keep practicing on my shorts.

Nothing is impossible.

Wednesday, November 11, 2015

To California, I Went

Me on the red carpet! EEK!
Bet y'all are ready for an update on my trip to California. It was a whirlwind trip, that's for sure.

My preparations for the trip was no less of a minor tornado of activity also. I shopped for some cooler weather clothes, arranged for the animals to be taken care of, and packed. As I was packing, it hit me that my backpack wasn't going to be big enough so I grabbed my Samsonite duffle out of my closet. Everything fit in there perfectly. The only problem was I couldn't find the shoulder strap. I fiddled with it a few times to make sure I could hold it on my shoulder and walk. It would have to do, I thought as I went to bed. I'll make it manage.

Wouldn't you know the morning of my afternoon flight, my raw spot on my AFO clad foot would break open. Yep, an open pressure sore would definitely complicate things. I went to my doctor. He cut away the dead skin and gave me the usual ointment to promote healing, deaden some of the pain, and keep infection at bay. He had standing orders for me to keep off it. I crossed my fingers behind my back as I agreed to comply. There was no way to put off the premiere or the California trip.

This bag and I have traveled the world
I got home in time to grab my purse and my duffle. It all slung on my shoulder beautifully. I put them in my car and headed to the jet port. My airport doesn't have regular long term parking. It's park where you can and it's free. Because of my handicap license plate, I got a spot right by the front door. These are the perks of living in a small town. After I parked, I went to lift my purse and bag onto my shoulder, and wouldn't you know it, I couldn't get it to stay on my shoulder. Of course, I was juggling them as I pushed the button to lock my van. I didn't get the load seated right again after numerous attempts either.

Finally, I said the heck with it and carried the bag, my purse, and my cane sort of half mast on my upper forearm. The downside of being in a small town airport is that there aren't any porters to help you with your bags either. Luckily, two airport security folks saw me struggling and ran for a wheelchair. I started to protest that I could walk, but I looked at the long passageway and thought better of it. Oh boy! I hadn't even left town yet and Murphy's Law had hit me twice.

As we took off, the rain started. Do I need to mention how rough the flight was? The flight had been delayed for an hour and a half. So much for a two-hour layover in Atlanta while waiting for one of the stars of the movie. He had twenty minutes to get across Hartsfield-Jackson airport before we were refueled and ready to take off. Not that we would have left without him. The weather had gone from a light rain shower with a slight bit of turbulence to a heavy downpour with a light show. Four and a half hours later, we arrive in California. I think if we had actually touched the ground, I would have kissed it.

It was 10 PM PT, but all of us were on Eastern time by the time we reached the Hyatt Regency. So for us, it's 2AM. We checked in and they had taken my request for a close room and no stairs seriously. They were even apologetic about the room only having two full sized beds instead of the usual king suite that had been arranged. I think I got the better deal because I had a garden patio room. Great view of the beach and yachts too. I ordered room service and checked out my surrounding while I waited. After chowing down on a Reuben and fresh fruit, I fell into bed totally exhausted. I had a rude awakening about three hours later with my spastic leg. An unmerciless cramp, it ran from my thigh to my big toe. All I could do was beg, plead, roll, and cry until it was over.

I managed to get a few more hours sleep and awoke more tired than rested. I was excited about the premiere and knew there was a long day ahead of me. This is what the day's schedule looked like...
11:45- lunch with the cast and crew
1:00- media briefing
4:30- meet limo in the lobby. It may sound like down time in between, but the media briefing was over at 3:30.
5:00- event check-in. Walk the red carpet, photographs, get your name tag. I was listed as a stroke advocate.
5:30- cocktail party. I was thankful for the heavy hors d' oeuvres. I sampled most of everything from mini sliders to the smoked salmon.
6:00-8:00- the movie- Disconnected screening.
8:00- Q&A
9:30- after party. I have to admit that I'm not a hip partier any more. I asked to be taken back to the hotel at 10:30. Again, it's Eastern time last call (2:30 AM).

I did mange enough time to swing by the hotel gift shop for some souvenirs for my daughters.  The only bad thing was the exhaustion coupled with the limo picking me up for the flight home at 6:00AM. There wasn't time for sightseeing. It was all business. By 9 PM, I was in my own bed sawing logs. Like I said, a whirlwind. I'll have to go back to do all the rest. Maybe one day.
Movie poster

Now  about the movie...

The Blurb -
In this first-ever documentary on PseudoBulbar Affect (PBA), award-wining documentarians Doug Blush and Lisa Klein will take you on a revealing journey as they follow the triumphs and challenges of people with certain neurological conditions or brain injuries living with this little-known condition.

DISCONNECTED is both an emotional and uplifting film about fate’s unexpected path and how these families support one another in an unsteady journey of both laughter and tears.

Release Date- 2016
The Trailer...

The man in the first part of this trailer is Scott Lotan. I first saw him on YouTube (the clip of him laughing) when I was first diagnosed and doing research on it. I had the pleasure of flying with him and his significant other Mindy on the way to California and back again. A more down to earth soul as I'll ever meet. We are kindred spirits.

Unlike most in the film, I both laugh and cry with my episodes. I have no real control when it happens or know why it happens other than my damaged brain. For once since my stroke, I felt comfortable around a group of people. It didn't matter that I was paralyzed or couldn't totally control my emotions because they were like me and totally understood. We all had our little episodes and went on. I feel like I've made friends for life. I honestly feel honored by just being included with this fabulous group of men and women.

What I loved about California is no bugs! No mosquitoes or gnats! I didn't get bit once until I got back home.

It's like I keep saying...
You are not alone!

Sunday, November 8, 2015

Sunday Stroke Survival: Science Fiction to Science Fact Again

Remember in the movie, My Stepmother is an Alien, Kim Basinger (alien) had this hand bag that could recreate anything in short order? In 1988, this possibility was still just a dream. This movie was before your time, er, um, try to rent/download a copy. The movie itself is hilarious!

That's what I thought of when I first heard of 3-D printers a few years ago. Shades of science fiction turning into science fact.  Imagine the possibilities, both good and bad. It didn't take long for someone to print out a fire-able weapon with it. But, for general purposes, I'll ignore the more shadier aspects of having such a printer.

List price $2,499
While costly only in retrospect, I spent $2,000 on a custom built desktop commuter in the later 1980's. (100 meg hard drive, 12X r/w CD ROM, and a whole whopping 4meg of RAM, and a souped up graphic accelerator) It was a dream machine at the time so don't laugh too hard. Now they are about 100 fold more powerful for a couple hundred dollars. I predict the prices will come down with time just like all the other new technological toys.

The Ultimaker was rated as the best 3-D printer. (Top Ten Reviews  for 2015) I guarantee we will look back on it in twenty years and snort that we ever used such a dinosaur. Just for reference I pulled out my first Atari game console to amuse my grandchildren while packing stuff up. They had fun playing with it but were soon bored with the limited graphics capabilities.

What could one of these printers mean for a stroke survivor?

How about eating utensils that you don't have to order and wait for it to be delivered. You could just print off what you needed; when you wanted it.

How about braces and splints? We have all spent untold bucks on braces and splints over the years. How long did you have to wait, doing without until it was delivered? What if the sales rep could take the necessary measurements and print it out while you waited? Now no more waiting for weekends, or holidays, or production/shipping time to end before you get a usable end product.

What if you needed something special? I know from personal experience, that it took two weeks to get a thumb/wrist splint modified so it would be flexible enough at the wrist to handle my spasticity, but firm and padded enough to prevent contractures in my thumb. During the wait, I had a cocked up wrist splint that spent more time off my hand than on it because the wrist wouldn't allow for the downward spasticity in my wrist. The plastic support actually sliced into my hand.

Anything you can design with CAD (computer aided drafting program) software can be built with these printers. You are only limited by your imagination. That's really awesome, isn't it?  I can see the advent of  a new "Want to/Get it/Now" opportunity opening up with this technology hitting the home markets as it is doing now.

I can see it now, they will become everyday household items that we can't live without like indoor plumbing, electric refrigerators and televisions were to my grandmother. Personally, I'm waiting on disposable clothing and food synthesizers. No more dirty dishes, burnt meals, or laundry! Yeah, George Jetson here I come.

Now I know if you were laughing about my custom built computer, you won't remember this from 1963. This was supposedly the 21st century. Well, the century is not over yet. Remember...
Nothing is impossible.

Sunday, November 1, 2015

Sunday Stroke Survival: Blood Pressure Issues

I know you've heard the saying of too much of anything is bad. I always talk about balance. Too low or slow is bad. Too high or rapid is bad. The same thing is true with your blood pressure. Did you know that high blood pressure is not only from bad habits like too much salt and over eating? My four-month old grandson has high blood pressure too!

The only reason the pediatrician can find for this is a strong family history for this problem. Needless to say, everyone is watching him carefully. High blood pressure is one of the leading risk factors for stroke and heart disease. He also has those things in his genetic mixed soup too which isn't a good thing. The genetic markers of family health issues is one thing I wish I could change about the legacy I passed down to my children and future generations. Like his brother's diabetes at age 4 years old. But we can't change our families.

High blood pressure was one of the risk factors that I gained from birth, but it was only a tendency. My strokes were caused by blood clots breaking free from my damaged heart. Coupled with thinning and hardening of my arteries, also a dual family history trait, didn't help. But I look at this precious infant just discovering the world aroumd him and curse genetics.

So how does my daughter combat the high blood pressure in her son? Well for one, she continues to breast feed him. She is also on a low sodium diet. What she eats affects what she feeds him. She makes all his baby food except cereal too. The only sodium she uses is what is found naturally in food. Now, keep in mind, my daughter has no blood pressure issues, but she is doing all of this for her son.

She comes by this naturally so it is no sacrifice for her. She grew up in a organic, low added sodium household. She is also on a low dose blood pressure medicine which passes through her breast milk to my grandson. It doesn't affect her blood pressure too strongly. She finds the more she exercises, strolling the block with her children, the stronger her body counteracts the medicine. But the result is my grandson's blood pressure is now under control. She is also doing baby type exercises with him, not that he's overweight. He is actually small for his age, but doing more.

When you do everything possible to prevent harming your body, sometimes it's the genetic roll of the dice that affects your future. That's what we are praying doesn't happen for my grandchildren who are exhibiting all these genetic health markers at a younger age. With eight grandchildren, I've got a pretty good mix of genetics and dilution from their father to follow. With diabetes, cancer, stroke, high blood pressure, heart disease, kidney disease, arthritis to name just a few, I'm seeing all of these in a number of them.

So how do you balance the Russian roulette of genetic factors? Try to dilute the gene pool as much as possible through the fathers. Unfortunately this didn't happen for my children or my grandchildren. They ended up with double whammies. The same medical issues on both sides of the families. Poor kids. We don't often think of medical histories when choosing the fathers of our children and maybe we should.

Nothing is impossible.

Wednesday, October 28, 2015

Yard Sales, Gifting, Selling

I've caught the yard bug that's been going around forever. My #2 daughter and her friends have had it for decades. I went yard saling with them for the very first time a couple of weeks ago. We were looking for a playpen, stroller, and\car seat so daughter #4 didn't have to bring them on the plane with her. They charge for checked baggage these days.We found all what we were looking for plus a high chair for my littlest grandson. All for about $40.

I haven't truly caught the bug, but it was an interesting experience. Don't get me wrong, I've been to yard sales, estate sales, and auctions many times before, but have never searched for anything specific like we did that weekend. I've never gone to yard sales after yard sales, looking for signs etc. Mostly, my experience has been a rub across one and stop because something caught my eye. Auctions are a totally different animal entirely.

Last weekend I went to a yard sale down the street. I picked up two sets of almost new twin sized
mattresses and box springs for free, two rolls cage and garden wire (almost full 50' rolls) with posts ($5), and four repurposed garden seats made from old tires ($10). The rolls of wire alone are $17 a piece in the store.  One bed set went to me  and the other went to one of my grandsons. Then I found a sale that I couldn't pass up a bed frame with drawers and headboard for under $150.I know I planned on the Murphy/desk\bed, but things change. My daughter gave me a corner computer desk they didn't need. I figure the drawers will hold the bed's sheets and blankets. They are really deep drawers.

I purchased vinyl bags to encase  both the mattress and box springs in. I don't want someone else's creepy crawlies and with my allergies, it was a necessary thing to do. I bought a definitely feminine quilt in pinks, purples, and blues. I even found a counter height dining table and chairs in a light wood mosaic top while I was getting my bed for $129. The seats of the chairs are 24" so it's just a question of sliding my behind onto and off of them. Now I just have to find a floral loveseat and I'll be set. I think I scored big time.

I've never even hosted a yard sale although I helped a friend with hers many decades ago. That changed this past weekend. I (well, my daughters) hosted my very first yard sale. I had three of my daughters do the work and they split $300 between them. No too shoddy for four hours work. I've planned on four yard sales to divest all my unwantables. Yes, I have that much stuff to sell and it's a yard full. Everything that does not sell will be donated to Salvation Army, Faithworks, or Goodwill.

I bought an electric spinning wheel and it arrived yesterday. I was so excited! It is something I've wanted for years. I been busy combing out all of the sheep's wool I washed. Since I do short draws only now because of my stroke, it made sense. I still have my handmade wheel too, but spinning will go so much faster with this new wheel. I've been talking to the maker of this wheel for two years now. She was so excited that I was spinning again that she threw in the tote bag for the wheel and the natural wax for the wood protection for free. I always try to buy local when I can, and she lives in Braselton, GA. Well, not exactly local, but in Georgia. Each one of her wheels is custom made so each is made with love. I like that.

Everything is going out this week to various homes and will be finally out of mine. This will leave
my three bedrooms empty at last. It's been a longtime coming. The store room, game house (an actual separate building), the garage/attics will each be separate yard sales in the coming weeks. Then I'll finally be free of all this stuff that was more than I could handle. Most I haven't used or needed in years. My house will no longer be used by my children to store stuff either. They can keep track of their own stuff. It's my stuff; my way from now on. Four rooms of livable space between the living room/dining room, rabbitry/storeroom, kitchen, and bath will be so much easier for my children to go through when I pass, but until then it will be easier for me to manage. Not the 200 sq ft of space that I imagined, but 500. Still a lot smaller than 2000 sq ft. A 3/4 drop of used space. I still have a workable full sized kitchen for canning and cooking. A full sized (5x7) handicapped equipped bathroom, plus a full 12x12 storeroom and a 11x15 rabbitry/craftswoman.

Sort of like this
I've got plans for the game house too. Water damage has ruined the interior walls and carpeting. A neigh's tree fell on the storage closet of the game house and my metal garden shed a couple of years ago. The building will be gutted and left open one one side. It will become my barn for yard equipment, and the new chicken house. The metal shed is history. It was ancient when we bought our property 18 years ago. I'll also be storing my hay in there for the rabbits and chickens. I figure two layers will be enough eggs for me. If I have four, I can sell fresh eggs. Then remaining chickens will be fryers for my freezer. I'm planning on purchasing a dozen to start with. I'm also expanding my gardening efforts. I'll be adding two more elevated raised bed and twp standard 4x8 bed to the garden. The standard bed will grow corn, pole beans, and squash in the three sisters method of gardening. Corn will feed me and the chickens in the winter. The other standard bed will
be my new grass hay area for the rabbits.

Speaking of rabbits, I lost dear, sweet Clover this past weekend. Cause of death, I don't know. She didn't appear to be sick just kind of mopey. I gave all  the bunnies their evening snack and attention and went to bed. In the morning, she was dead. So I'm down one female angora.I'll miss the easiest rabbit to groom. The others are a handful. It leaves Dubu without a mate. I may sell him and go back to my original plan of raising only BEW (blue eyed whites) in my rabbitry. I still haven't decided. Dubu is such a big boy and he hasn't reached breeding age yet.

Well, that's my update. No Wednesday post next week because I'll be flying to California for the premiere. Have a terrific week. Now a blast from the past...