Sunday, October 8, 2017

Sunday Stroke Survival: I've Gone and Done It Now...

I've gone and done it now. I finally got tired of the hurry-up-and-wait for others to act. I've only been talking about my waiting for what...three or four months now?

I figured waiting on Shepherds Center was just another wait time twiddling my thumb awaiting the unknown. Try doing this with one functioning thumb. I was born under the zodiacal sign of the bull. Very apt for me because I'm stubborn as a bull, and hate being patient awaiting on others. I took the bull by the horns.

I made an appointment with a neurosurgeon in the next big town (30 minutes away). Today (Tuesday) was that appointment. I apologized before I began my tale because I might get ugly in the telling. I figured forewarned is better than them thinking I was just another whinny stroke survivor boo-hooing about their life of limitations. You all know I'm NOT one of those people.

I figure I've been more than patient and cooperative for the last few years with trying everything for combating my post stroke spasticity. I've done research upon research for alternatives. I've played guinea pig for treatments, drugs, and anything anybody else could think of including electricity running through my limbs. Endured pain levels where all I could do was curl up and cry because there was no relief. It was all done in the hopes of controlling this demon which has stolen my recovery. Quite literally. I've lost what I've regained of arm and hand function because of the spasticity.

The results of the appointment...they can't help me. In this case, there was a BUT. The kind of BUTs I like. They can't help me but they will make an appointment with someone that can a functional neurosurgeon at Emory University in Atlanta. It means diving an hour, but at this point I'm grasping at straws..any straw available. Somebody on this Earth has to have the answer. These guys literally helped write the textbook on the subject.

Although in looking at the abbreviation (above) for the American Society for Stereostatic and Functional Neurology, it's ASS F(i)N(al) struck me as I first saw it. I don't know if this means they are all asses and what they say is final, or that this is the final straw for my ass. Either way, it's a shot of hope.

Now about my shoes. I've been waiting and burning up Ma Bell for months now also and still no shoes. I thought I had resolved this problem a month ago. Nope! The orthotic company still has not received the necessary paperwork as of this morning. Since I was in town for my neurosurgeon appointment anyhow, I decided to hail hell fire down on both offices until I had an appointment to get my shoes ordered. I was tired of waiting. I'm already starting on yet another decubitus ulcer forming on my AFO clad foot because of my shoes no longer supports my foot correctly. I was not my usual nice person in either office. I went to the orthotics place and picked up another set of the paperwork and hand carried it to my PCP's office. All of four blocks away. I signed in at my PCP's office. No, I didn't have an appointment, I explained to the front desk clerk, but I wasn't leaving until I got this matter resolved today. I explained why I was there too to the poor girl. She in turned called one of the nurses up to the front desk. If all else fails...pass the buck. I explained my situation again. The nurse took a no nonsense attitude and marched to the back of the office where the doctor was seeing patients.

Fifteen minutes later, the nurse returned with the filled out and signed paperwork in hand. I rose to take them from her. She shook her head and walked to the fax machine. Within five minutes, she motioned for me to join her at the desk. She told me to go to the orthotics office and make my appointment for my shoes. She was a nurse after my own heart and she did exactly what I had done in the past. Again, she apologized for the delay in getting it done, but her actions spoke volumes. I went to my brace maker and got my appointment...October 18th, my beloved husband's birthday. Two weeks after that, I'll have my shoes.

It's been a eventful/uneventful couple of months. Hopefully, not soon to be repeated.

Nothing is impossible.


  1. Oh, Jo! That's fabulous that there was movement. Even thought the doc couldn't help, they started you on your way. And the shoes! Love that nurse!!! -;-)

  2. You were right to be assertive about your foot. A pressure sore is serious.

  3. Zan Marie and Rebecca,
    Finally got measured for my shoes. Another week and I'll have them.


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